RN monday, Chaplin Tuesday, Social worker tomorrow, RN Thursday, Friday visit with her doctor to say goodbye…. Friday night, my brother comes. Next week funeral home comes to plan. Each of those days we drag out things, make lists, make plans, discuss how much she wants to be done, how soon it could come, how horrible it would be to drag out… I get it, but I hate it. How many times can a “child” hear that their parent wants to die. I cry every day… I can’t imagine my world without her. She does seem to be improving a little, at times and other times not so much. I feel like a child, that will be an orphan… no grownups that are mine.
Got mom home yesterday, hospice nurse met us at mom’s house. New meds, more confusion for both of us. We bickered a bit, I got frustrated she wasn’t listening and she felt I wasn’t listening. shortly after we both cried and apologized to each other. Got her clothes changed, medicated up (xanax and morphine make grandma happy) and settled in. Came home had dinner and did school stuff with Antone. Karl, Ashlee and I went back over about 9:30. They played on their phones, while I got mom medicated again and into bed. I stayed up too late and didn’t sleep well, but not doing bad. I’ll go over and a little bit and set her up for the day. Need to address some things with hospice, my bad not theirs.
Meeting with “heart ‘n home” which is hospice today in my mom’s hospital room. Anxious about my mom going home (I’d rather she was here, at my house, she doesn’t like my husband and isn’t a pet person), but not about hospice. I slept 9 hours, in MY bed, last night.